I arrived only mid-afternoon to see Ella — Etan slept in the hospital last night and then Lilly stayed with Ella for a few hours. I became concerned when I tried to move Ella even a little bit. She makes a really sour face and starts to cry. Later, Dr. Black came in for a few minutes to check on her. I told him about Ella moving less today than she was yesterday and the day before. I didn’t see her put her hand in her mouth at all today– not even an attempt. Dr. Black said we should watch and if the lack of movement is a clear trend, she should have another CT scan to make sure that her ventricles are not expanding (that would mean hydrocephalus is developing). I was not too happy to hear that but on the other hand, I’d rather they catch any serious side effects as soon as possible. The fevers have continued. Tomorrow they want to change her IV from a femur line to an arm one. The chance of getting an infection in the femur line which is right under her diaper is too great. Also, they are going to put in a nasal feeding tube tomorrow so that she can get some food in her tummy. Again, we’re not thrilled about that but maybe she’ll feel better to have something in there. I wish Ella was more responsive. Patience I guess is the key.